Today was okay.
Charlotte seems to be getting more and more uncomfortable each day, though whether that is from the medication or just being in the hospital is anyones guess about now.
Being here is a catch 22 sometimes... you get in good spirits and almost forget you are in a hospital... until you round a corner and there is a child pushing an IV pole with a bare head.
We had Charlie baptized in the Chapel downstairs, and her God parents were Rachel, Michael, Jenny, and Nick. It was absolutely beautiful. Everything went off without a hitch. We had nurse Lisa with us, who was able to give Charlie some morphine (she gets really uncomfortable when she is handled a lot) and then was able to disconnect her leads long enough to get her in her dress and run through the service. Charlie looked like any other normal plump pretty baby in her gown, and I will have pictures up soon.
In fact, everything went so well that Father Klink commented.
"She is a REALLY good baby! Is she this good ALL the time?"
And a small voice immediately piped up in the back row, "NO."
You can just about guess who that was.
Aimee and her sister Caitie stopped up and it was nice to have a bit of normalcy in the craziness that has become our life. We laughed for a while, and were able to just be ourselves, instead of ourselves plus a baby with cancer.
Charlie is slowing going global- I got an email from my aunt today who passed the word about Charlotte's cancer on to her friend Patti, who passed it on to one of her friends. We have people praying for us literally all over the country.
It is times like this that make you realize the power of the human spirit.
It is only unfortunate that it is realized during a crisis.
I am exhausted, as it seems nights are the hardest for Kevin and I.
After everyone leaves and the lights are out, we are faced with the awesome weight of this cancer on our shoulders. We have talked about so many what ifs, and so many coulda woulda shoulda's, that we are slowly running ourselves ragged.
And yet, in the midst of this internal struggle amongst ourselves, we are slowly emerging stronger and stronger.
This horrible thing that happened to our family is bringing us together until we are essentially one person with one heart and one goal.
Just to fight back the chance to be a normal family again.
God bless you all, and I will update soon.